Uncertainties Experienced by Parents of Children Diagnosed with Severe Combined Immunodeficiency Through Newborn Screening

Medicine, Pediatrics, Rheumatology and Immunology, Life Sciences, Immunology, Genetics,
Severe Combined Immunodeficiency   Newborn Screening   Uncertainty   Parental Experience   Healthcare   Emotional Support  

Instant Inclusion: In-depth Analysis of Uncertainties Experienced by Parents of Newborns with Severe Combined Immunodeficiency Research Background Severe Combined Immunodeficiency (SCID) is a rare and potentially fatal genetic disorder. Without timely diagnosis and treatment, patients face life-threatening conditions. In recent years, early identif...